LIVING WITH INVISIBLE ILLNESS — COUNSELLING AND SUPPORT
LABIRINT
The inner world of invisible illnesses.
If life with an invisible chronic illness took physical form, it would look like a labyrinth.
You do not enter it by choice, and you do not know its paths. Over time, you begin to recognise them — their turns, obstacles, dead ends, and the paths you have already walked.
Within this Labirint, certain aspects of living with illness appear time and again. I call them Corridors. The seven Corridors illuminate different parts of this experience — from our relationship with time and our own identity, to relationships with those close to us, the system, and life with an illness that has no pause button.
ENTER
7 CORRIDORS
Click a Corridor to enter.
01FOREVER
Life with an illness that does not go away
THREE IDENTITIES
Who am I with this illness?
WHEN CARING EXHAUSTS
Caregiver burnout
EVERYTHING HAPPENS FOR A REASON. BUT DOES IT?
Toxic positivity
YOUR OWN ADVOCATE
Finding support and navigating your rights
WHEN A WORD IS NO LONGER A WORD
When a word cannot convey the experience of a symptom
INVISIBLE ILLNESS
What others cannot see
The Corridors are not stages and have no set order. You may find yourself in several at once, while returning to others.
HOW I CAN HELP
Living with an invisible chronic illness often raises questions that do not belong only in a doctor's consulting room.LIVING WITH ILLNESS
Support with the changes illness brings to identity, relationships, work and everyday life.
MORE →02THE HEALTHCARE SYSTEM AND DECISIONS
Preparing for appointments and support in presenting symptoms, questions and needs clearly.
MORE →03THE LEGAL AND SOCIAL FRAMEWORK
Finding your way through ZZZS and ZPIZ rights and procedures, and questions related to work in Slovenia.
MORE →ABOUT ME
I’M UNA.
I have lived with invisible chronic illnesses for more than 16 years. I spent twelve years searching for answers before I received a diagnosis.
In time, I realised that a diagnosis mainly answers one question: what is happening to my body. A great many others remain unanswered.
In Labirint, I bring together three worlds I know closely: personal experience of chronic illness, legal knowledge, and knowledge of relationships and human experience.
I hold a master's degree in law, have passed the Slovenian professional examination in social welfare, and am currently continuing my education in the field of marriage and family therapy.
ABOUT ME →
I will not promise you a way out of Labirint. But I can walk alongside you for a while.
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